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Below are links to useful resources and documents that you may find helpful. If you would like to add to this page please e-mail the details to mail@togetherfdc.co.uk.
 Short Break Workforce Recruitment Resources
The BIG Recruitment Challenge project funded by the DCSF Shared Care Network – the Short Breaks Charity is launching a DVD of short films to help local services recruit short break carers and workers. The 'Be the BIG Difference' DVD is being made available to local services. The seven films feature a variety of people including family-based short break carers; contract carers; outreach workers; young befrienders and sitters as well as interviews with the families they support. The introduction is by DJ Jo Whiley who herself has a disabled sister.
The films and DVD are being launched in Share the Care Week (7-14 March) as part of The BIG Difference carer recruitment campaign. Please ensure short break services in your area are listed on the searchable map www.theBIGDifference.org.uk. This will signpost people enquiring about becoming a short break carer to short break services in your local area.
A free copy of the DVD, photos to use in recruitment materials and a recruitment pack are available to local services. For more information contact Verity Hitchings on 0117 9415361 verity.hitchings@sharedcarenetwork.org.uk
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Every Disabled Child Matters (EDCM) is proud to present the Disabled children's manifesto for Change which is based entirely on the views of disabled children and young people themselves.
EDCM introduce this Manifesto for Change, which sets out what disabled children and young people want political parties to do to make the UK a better place to live.
Disabled children and young people have the right to participate in every decision that affects them. It is everyone’s responsibility to take a proactive approach in identifying solutions and removing barriers, giving disabled children and young people the equal
opportunities they deserve. |
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A report by Contact a Family into what makes families with disabled children stronger – socially, emotionally and practically |
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Norfolk has developed this document to support and safeguard children and young people, parents and carers, and staff and managers who are responsible for such children and young people's care and well-being.
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Whizz-Kidz - is a charity that is all about giving disabled children and young people the independence to enjoy an active childhood – at home, at school and at play.
By providing them with customised mobility equipment, training, advice and life skills, they actually give them something much more important; the independence to be themselves. They make an immediate and life changing difference to their lives and their families. Link |
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Shared Care Network – The Short Breaks Charity was founded by short break scheme organisers who felt a need for a co-ordinating national body to share information and promote good practice in this newly developing field. Today, Shared Care Network represents around 180 services UK wide providing family-based short breaks and other short break services to support disabled children and their families. For further information click Link.
For more information, and to sign up to regular updates from Shared Care Network please see www.sharedcarenetwork.org.uk. |
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Oxfordshire Youth Enablers (OYE!) started in October 2008 and provides disabled children and young people with exciting opportunities to have their say on how things like transport, the environment, schools and work can work better for everyone.
OYE! now has an accredited training course designed for disabled young people to learn how to consult with other disabled children and young people. For further information and links to reports about the work the group has done so far visit the website. |
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The Foundation for people with learning disabilities have produced a booklet for young people and their families, friends and supporters to read and talk about together. It is based on the stories of four young people. It uses the person-centred planning approach and aims to give ideas about what to do when leaving full-time education. To download a copy please visit: Link |
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EDCM's campaign briefing Disabled Children & Health (PDF) highlights the failure of the NHS to meet even the basic needs of disabled children.
The campaign report highlights a clear disparity between central government policy and local delivery and calls on the Department of Health and Primary Care Trusts to take action to improve health services for disabled children. |
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EDCM's campaign briefing Disabled Children and Housing (PDF) says families with disabled children may be the worst housed families in Britain. It highlights that fewer than half of disabled children live in housing suitable to their needs - a lower proportion than for any other age group of disabled people. The above link provides summary of the evidence on housing and disabled children by the Joseph Rowntree Foundation |
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EDCM's campaign briefing Disabled Children and Child Poverty (PDF) shows that families with disabled children face additional costs and lower incomes than other families. Disability Living Allowance (DLA) is the key benefit designed to meet some of the additional costs faced by families with disabled children - yet only half of the total population of disabled children in the UK receive it.
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Health, Children's Services and the Voluntary Sector are working together within Norflk to provide a comprehensive support network for disabled children and their families across the country. This booklet tells you what is available. |
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A report by the foundation for People with Learning Disabilities which presents the findings from 251 fathers who have completed a questionnaire. |
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Think Fathers is a nationwide campaign which aims to stimulate a national public debate about fatherhood and raise awareness of the hugely valuable role fathers and father-figures can play in a child’s development - from the day they are born, and right through their lives.
It's being run by a partnership including the Fatherhood Institute, the Department for Children, Schools and Families, the Children’s Society and the National Academy of Parenting Practitioners.
There are four ways to get involved, for further information visit the website: www.think-fathers.org. |
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Welcome to the website of the Commissioning Support Programme. The site provides a meeting place for commissioners working in all areas of children’s services. You can access content relevant to your roles and learn more about approaches being taken by colleagues in other parts of the country. The site has been designed to help you in your day-to-day work of achieving better outcomes through commissioning. |
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talkaboutautism.org.uk (website) - An online autism community hosted by TreeHouse, the national charity for autism education. This site has been created for parents and carers of children with autism to share their experiences, in a safe and reliable environment. The site is moderated by trained staff. |
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EDCM Short Breaks Tracking - Interim Report April 2009
From 2008 to 2011 the EDCM is undertaking an on-going qualitative research project with the aim of tracking the impact of the AHDC short breaks programme on the lives of disabled children and their families in England. EDCM will draw on evidence from parents co-ordinated through a local parent forum, other available data such as local surveys and any other available evidence being gathered. EDCM will engage with around 27 parents from existing parent groups in 2 pathfinder and 2 non-pathfinder regions. Families will document changes in their experiences of short breaks services in their local authority at quarterly intervals, gathering evidence in relation to levels, quality, process, choice and control.
The purpose of this interim report is to provide a snapshot of the experience of parents of disabled children in order to highlight examples of good practice and identify possible areas of concern. |
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Brighton & Hove - Direct Payments webpage for people with physical/learning disabilities, sensory impairments, mental health issues, and their carers.
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Resources to support the implementation of the Aiming High for Disabled Children Programme.
This list includes some publications and tools that can help services put the wider Aiming High for Disabled Children programme into practice. It covers many of the areas that the whole Aiming High Programme is concerned with.
Service Types are:
Participation, Short Breaks, Childcare, Palliative Care, Transition Support and Other. |
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The Social Care Institute for Excellence (SCIE), supported by the Council for Disabled Children and Aiming High Implementation Group, has published a good practice guide to short breaks.
This is in respones to the new duty on local authorities to provide short breaks for disabled children introduced in March 2008. The guide has been compiled following research with a wide range of networks and includes many examples of innovative family-friendly practice.
Having a break: good practice in short breaks for families with children who have complex health needs and disabilities is aimed at commissioners and service providers for children with complex health care needs and their families.
To view the resource guide please use the following link.
The following is a research and document list published by SCIE link. |
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