 | AHDC Short Breaks Implementation Guidance | | Informs Primary Care Trusts (PCTs) and local authorities provision of short breaks. PCTs should also consider this guidance in shaping their response to the 2008-09 NHS Operating Framework priorities. |
| Consultation on Draft Regulations, and Associated Statutory Guidance, for Local Authorities to Provide Short Breaks for Carers of Disabled Children and Young People | | Launched: Monday 01 Feb 2010 12:30
Closed: Monday 26 Apr 2010 23:45
The commons agreed July 2010 to proceed as planned and introduce a duty on local authorities to provide short breaks.
Consultation documents: • Consultation Document • Regulations • Guidance • Impact Assessment (1) • Impact Assessment (2) • Response Form |
 | Direct payments - arranging your own care and services | | Guidance from Directgov for the general public |
 | Direct Payments for Healthcare | | This document is to assist primary care trusts to meet the requirements of direct payments. It is written to reflect the requirements in the National Health Service (Direct Payments) Regulations 2010. |
 | Disabled Children's Manifesto for Change - September 2009 | 30/09/2010 | Every Disabled Child Matters (EDCM) is proud to present the Disabled children's manifesto for Cha nge which is based entirely on the views of disabled children and young people themselves. EDCM introduces this Manifesto for Change, which sets out what disabled children and young people want political parties to do to make the UK a better place to live. Disabled children and young people have the right to participate in every decision that affects them. It is everyone’s responsibility to take a proactive approach in identifying solutions and removing barriers, giving disabled children and young people the equal opportunities they deserve. |
 | EDCM National Campaign Briefing - Disabled Children and Child Poverty (pdf 128kb) | | A campaign briefing launched in 2007 setting out the evidence that shows disabled children are more likely to live in poverty than other children. The briefing includes recommendations for change. |
 | EDCM National Campaign Briefing - Disabled Children and Health (pdf 417kb) | 01/06/2009 | A campaign briefing launched in June 2009 setting out the experiences of disabled children and their families in relation to health services. It includes policy recommendations for Primary Care Trusts and the Department of Health. |
 | EDCM National Campaign Briefing - Disabled Children and Housing (pdf 171kb) | | A campaign briefing launched in 2008 supported by evidence from the Joseph Rowntree Foundation. The briefing shows that families with disabled children may be the worst housed families in Britain and makes recommendations for change. |
 | EDCM Short Breaks Tracking - Interim Report April 2009 (pdf 224kb) | | From 2008 to 2011 the EDCM is undertaking an on-going qualitative research project with the aim of tracking the impact of the AHDC short breaks programme on the lives of disabled children and their families in England. EDCM will draw on evidence from parents co-ordinated through a local parent forum, other available data such as local surveys and any other available evidence being gathered. EDCM will engage with around 27 parents from existing parent groups in 2 pathfinder and 2 non-pathfinder regions. Families will document changes in their experiences of short breaks services in their local authority at quarterly intervals, gathering evidence in relation to levels, quality, process, choice and control.
The purpose of this interim report is to provide a snapshot of the experience of parents of disabled children in order to highlight examples of good practice and identify possible areas of concern. |
 | Guidelines on the discharge from hospital of children and young people with high support needs | 06/04/2010 | These Council For Disabled Children guidelines are written to assist staff in tertiary and local hospitals as well as the commissioners and providers in Primary Care Trusts in planning the discharge of children with high support needs. The purpose is to set down a framework that staff may find useful when negotiating and planning discharge discharge. |
| Life Coach Directory | | The purpose of the site is to enable individuals to find a life coach close to them and appropriate for their needs. This is a free, confidential service that will help those seeking a new direction in their life to find the encouragement they need. The website also has articles on a range of personal development topics. |
 | Marmot Review - Fair Society, Healthy Lives | | February 2010 This was the culmination of a year long independent review into health inequalities in England which Professor Sir Michael Marmot was asked to chair by the Secretary of State for Health. The review proposes the most effective evidence-based strategies for reducing health inequalities in England from 2010. |
| Norfolk - Handling Behaviours that Challenge | | The intention of this document is to provide Norfolk agencies with guidance on the circumstances in which: a) management of behaviours by non-restrictive means, and b) physical restraint, may be appropriately used, the procedures that should be in place and the techniques which are considered to be suitable. It is vitally important that staff, children, young people and parents/carers understand these procedures and the context in which they apply. |
 | Recognising Fathers - Foundation for People with Learning Disabilities | | Page of resources on ‘Recognising Fathers’: about the experiences of fathers who have children with learning disabilities. Including a national survey of fathers who have children with learning disabilities’, presents the findings from 251 fathers who completed a questionnaire, a Need2Know briefing for policy makers, commissioners and services
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| Resources to support the implementation of the Aiming High for Disabled Children Programme | | This list includes some publications and tools that can help services put the wider Aiming High for Disabled Children programme into practice. It covers many of the areas that the whole Aiming High Programme is concerned with.
Service Types are: Participation, Short Breaks, Childcare, Palliative Care, Transition Support and Other.
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 | SCIE - Research and Document List | | |
 | Short Break Workforce Recruitment Resources - Shared Care Network | | The BIG Recruitment Challenge project funded by the DCSF Shared Care Network – the Short Breaks Charity is launching a DVD of short films to help local services recruit short break carers and workers. The 'Be the BIG Difference' DVD is being made available to local services. The seven films feature a variety of people including family-based short break carers; contract carers; outreach workers; young befrienders and sitters as well as interviews with the families they support. The introduction is by DJ Jo Whiley who herself has a disabled sister.
Please ensure short break services in your area are listed on the searchable map on the website. This will signpost people enquiring about becoming a short break carer to short break services in your local area.
A free copy of the DVD, photos to use in recruitment materials and a recruitment pack are available to local services. For more information contact Verity Hitchings on 0117 9415361 verity.hitchings@sharedcarenetwork.org.uk |
 | SkillsActive | | SkillsActive creates a framework of qualifications, training and continuous professional development based on industry requirements and standards. They ensure that employers can access the right qualifications, based on those national standards that have been designed by employers, ensuring their workforce is appropriately trained and qualified.
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 | What Makes My Family Stronger (PDF) published May 2009 | | A report by Contact a Family into what makes families with disabled children stronger – socially, emotionally and practically. |