Together for Disabled Children

 
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Parent Participation

  Support Documents
  Case Studies
  Other Useful Documents

Aiming High for Disabled Children aims to ensure that in each local area parents are involved in strategic decision making about the provision of services that their disabled children need. Involving parent carers at all levels of planning and developing services is the best way of creating cost effective and responsive services that work for families.

The development of parent participation is being supported by TDC through the Parent Participation grant program.

The How to Guide page contains information and tips to help people wanting to develop parent participation in their local area. .

The funding and grants page contains details of the grants available and how to apply for funding to support this work.

The links above will take you to additional resources on participation including support documents, case studies, examples of material developed by parents forums and a list of  trainers in participation. These will be added to as the programme continues. 

If you have examples of good parent carer participation which you would like to let us know about please contact participation@togetherfdc.co.uk.

We are arranging regional information and networking events for parents and professionals who are already involved in participation or who are not involved at present but who would like to know more.

I believe that professionals go into the caring professions because they want to help us and then they find that they have to defend a system that they have no control over. I feel like the system plays us off against each other and makes us enemies and wastes all our energies. But professionals are our natural allies and when we work together we are very powerful.’

Parent from Sheffield

 

TDC regional parent participation advisers can advise you on what is happening in your local area and answer any questions you might have about the programme. Their contact detail are in the link below.


 Contacting Your Parent Participation Advisor

Please find attached the contact details for your regional Parent Participation Local Advisors.


 Making Parent Participation Work: Toby Price, LB Sutton

 
 

More than 60 parents of disabled children from across London came together for a landmark parent participation event.

 

Together for Disabled Children organised the event to support parent carers in their efforts to be involved in planning and developing disabled children’s services.

 

This video features Toby Price, Head of Sutton Disability Partnership for Children and Young People, who talked about how parents and services have worked together in Sutton and the benefits that this has brought to all.

 

Please view the video using the links below.

 

http://tinyurl.com/6582hn

http://tinyurl.com/5sz8dj

 

 

 Events

Date Event Time Venue
26/02/2010 East of England - Being a parent representative - making it work for you 09:30 - 14:00 The Maltings
Ely
CB7 4BB
02/03/2010 East Midlands - Infinity and beyond! Developing action plans for sustainable participation 10:00 - 14:30 Nottingham Gateway Hotel
Nuthall Road
Nottingham 
NG8 6AZ
03/03/2010 West Midlands - Infinity and beyond! Sustainable participation in action 10:00 - 14:30 Edgbaston Cricket Ground
Edgbaston Road
Birmingham
B5 7QU

08/03/2010

North West - Sharing good practise and identifying barriers Parents 10:00 - 13:30, Professionals 12:30 - 16:00 Liverpool Football Club
Anfield Road
Liverpool 
L4 0TH

17/03/2010

North West - Reaching shared perspectives, moving forward with a joint vision 10:00 - 14:15 Liverpool Football Club
Anfield Road
Liverpool 
L4 0TH

 

Details of future events will be added shortly.

For further information, or to book a place, please contact Kate Johnstone on 0207 6088783 or at kate.johnstone@cafamily.org.uk.

 

Details of future events to follow.  Other TDC events can be found on the events calendar.


 News

Parent Participation grant levels for 2010-11 confirmed at £10,000 per local area (4 February 2010)
08/02/2010

We are pleased to let you know that the funding levels for Phase 3 of Together for Disabled Children have been confirmed, and that a parent participation grant of £10,000 will be available in each local authority area in 2010-11. We will shortly be publishing the Phase 3 Application forms on the TDC website, along with a new set of criteria and guidance on how the grant can be used. The closing date for applications is the 30th April. Phase 3 applications from recipients of phase 2 grants will not be considered until the Phase 2 Grant Monitoring and Reporting form has been received and signed off. The closing date for receiving the Phase 2 Grant Monitoring forms is 26 March 2010. All of the documents and guidance relating to Phase 2 grant monitoring are on the TDC website. See http://www.togetherfdc.org/Topics/PPFundingandGrants.aspx


Parental engagement
08/01/2010

The DCSF is undertaking research on what practitioners and settings can do to support and encourage stronger parental engagement. This will inform guidance and materials to help practitioners in schools, colleges, children's centres and early years settings to improve their work with parents. To feed into this research the DCSF is keen to hear about your experiences. In particular it wants any evidence you have for the success of particular approaches or that helps it understand why other approaches may have been less successful. It is important that practice is included which reflects experiences of working with parents of children across the full age range, that is from 0 to 19 years. See publication link for more information

Source: TDC

REDBRIDGE: Rights of disabled children to be discussed at conference
04/01/2010

THE LEGAL rights of disabled children and their carers will be discussed at a special conference in Redbridge next week. The event - which is also due to focus on the services available to disabled youngsters in the borough - will be held at Redbridge Town Hall, High Road, Ilford, on Friday, January 15, at 9.30am. The conference has been organised by the Parents Forum Interface, which was set up last year to fight for better services for families with disabled children.


Funding helps Horsham project for disabled children
08/12/2009

FOLLOWING a successful bid by Horsham District Council for more than £60,000 in funding, a co-ordinator has been employed to oversee a project for disabled children in the area. The council recently gained more than £60,000 of funding from the Department of Children, Schools and Families and the Department of Health to develop seven out of school activities for children with additional needs and their siblings, entitled 'Aiming High for Disabled Children'.


Dorset parents unite to campaign for disabled children
17/11/2009

ONE hundred parents have joined together to create a group dedicated to improving the opportunities and services available to disabled children. The Dorset Parent Carer Council (DPCC) launched this month and has secured £10,000 in funding through the Government’s Aiming High initiative.

Source: Dorset Echo

Parents launch new action group
10/11/2009

A PARENT action group was officially launched in Grimsby Town Centre. Members of the Parents United For Individual Needs (Pufin) held their launch campaign in Freshney Place. The group is funded by Aiming High and works to voice the concerns over issues surrounding children with additional needs. Amanda Burkitt, of Pufin, said: "The group was born from the Aiming High For Disabled Children consultation events that took place in 2008.


Comic celebrity Henry Normal to speak at Amaze Parent Information Fair
28/10/2009

All parents who have children with disabilities, complex health needs and special educational needs are invited to the Amaze Parent Information Fair on Friday 6 November at The Brighthelm Centre on North Road, Brighton. The event, for local families, will provide information stalls, goody bags and free pampering from 10.30am till 12.30pm - but the highlight for many will be hearing Henry Normal and his partner Angela Pell talk about their experiences of having a child with special needs. Henry Normal and Angela Pell live in Brighton and are Amaze’s new patrons. Henry began his career as a stand-up comic and poet and has been responsible for creating, writing, executive producing and script-editing some of the UK’s best television comedy of the last decade. Angela Pell’s career began as a performance poet and she’s a sit-com and film writer. Her first screenplay was the 2007 film, ‘Snow Cake’, which stars Alan Rickman and Sigourney Weaver, who plays an autistic woman The Information Fair also marks the launch of the Parent Carers Council (PaCC), a forum for parents of children with special needs which aims to help improve local services and support. The PaCC is supported by Amaze. The charity’s Annual General Meeting follows at 1.00pm and parents who book beforehand on 01273 772289 are welcome to stay for the AGM and lunch.


Children’s Minister: Building parents’ and carers’ confidence online with myguide
21/08/2009

Children’s Minister Delyth Morgan today launched a new facility on myguide, a free and easy-to-use tool to help parents and carers catch up with their children when it comes to the Internet. myguide helps provide the next step in the Government’s implementation of Dr Tanya Byron’s review of internet safety. myguide can be used independently, with the support of a friend or family member, or with help from experts in one of the thousands of UK online centres based in libraries and community organisations.

Source: DCSF

Young Minds Parents Helpline Survey
10/08/2009

Are you are a parent of a disabled child or a disabled parent? YoungMinds parent helpline wants to get parent’s views to find out about the emotional wellbeing of their your children, and what help has been offered if things get tough.

Source: Young Minds

Young Minds Parents Helpline Survey
07/08/2009

Are you are a parent of a disabled child or a disabled parent? YoungMinds parent helpline wants to get parent’s views to find out about the emotional wellbeing of their your children, and what help has been offered if things get tough.

Source: Young Minds

Contact a family - Big Day Out!
09/07/2009

As part of Contact a Family's 30th birthday celebrations the Big Day Out will encourage and facilitate families with disabled children to get out and about and enjoy play and leisure together throughout the month of August. Read more and access the Big Day Out toolkit via the above link.


Parents rate local authorities on services for disabled children for the first time
13/05/2009

Sarah McCarthy-Fry, Minister for Children, Schools and Families today announced the results of the first ever national survey of parents’ views of services for disabled children. On average, parents rated the services for their disabled child as 59 out of 100, providing the Government and local areas with the first ever tangible base point from which to track progress or changes in perceptions and experience in future years on services for disabled children, covering health, education and social care. The score means that local areas can track their progress and means that families can expect to see further improvement as local areas benefit from the ground-breaking Aiming High for Disabled Children programme and the resources Government is investing in transforming services for disabled children.


North East Lincolnshire Aiming High for Disabled Children Feedback Newsletter
08/04/2009

Over a three month period North East Lincolnshire Council held a number of consultation events. They received over 427 comments from the parents/carers, young people and workers. They have issued a newsletter which brings together the over-arching themes expressed in the consultation and responses to comments, which include: - Relationship building - Information provision - Equality of access and service provision - Staff training - Town planning and transport To view the newsletter please click the link below.


North East Lincolnshire Plan Together Database
08/04/2009

Each local authority has a legal requirement to collect information about children and young people with special needs and disabilities. This is so they can monitor, plan and provide services that meet the needs of those children and young people. Plan Together will be the tool that is used for the collection of this information. At present North East Lincolnshire council does not have enough information from families and their children about their requirements. If services are to develop we need to collect information that can then inform the shape, size and type of service. The council is therefore encouraging parents and carers to join the database.


Funding and payment arrangements for the 2009-10 Sure Start, Early Years & Childcare Grant (SSEYCG) and Aiming High for Disabled Children (AHDC)
19/02/2009

Attached is a letter to Directors of Children's Services, LA Chief Executives and LA Finance colleagues from Frances Carter, Team Leader, Early Years, Extended Schools and Special Needs Group. the letter sets out the funding and payment arrangements for the 2009-10 Sure Start, Early Years & Childcare Grant (SSEYCG) and Aiming High for Disabled Children (AHDC) and also the terms of grant which local authorities will need to accept before any funding is released.

Source: DCSF

Parent participation takes off
15/01/2009

Parent groups in 97% of English local authority areas have now been allocated funding to help them have a say in planning and shaping disabled children’s services. In just two months parents with disabled children in 145 of the 150 local authority areas were successful in bidding for grants to help them get involved in local decision making. Over the next year a further £1.5 million is available to parent groups to develop participation activity across England, as part of the Aiming High for Disabled Children (AHDC) programme. To read more on this press release please refer to the document within the link.