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Together for Disabled Children > Topics > Parentalparticipation  


Parent Participation

Aiming High for Disabled Children aims to ensure that in each local area parents are involved in strategic decision making about the provision of services that their disabled children need. Involving parent carers at all levels of planning and developing services is the best way of creating cost effective and responsive services that work for families.

The development of parent participation is being supported by TDC through the Parent Participation grant program. To find out more please contact the parent participation adviser in your area. 

The related links go to additional resources on participation.


 Related Links

  The How to Guide on Parent Participation page
 to help people develop parent participation in their area
  National Parent Forum Network
The DCSF has commissioned Together for Disabled Children (TDC) to set up a pilot National Parent Forum Network with the aim ‘to ensure that good practice, knowledge and shared expertise is not lost at the end of the TDC programme’.
  Interesting and Innovative Practice
examples that have worked well
  Other Useful Material
including list of trainers and information sent in by parent forums 
  Support References
supporting material on parent participation
  Parent Participation Funding and Grants page
doucuments relating to the grants programme and how to apply for funding
  Contact A Family - Parent Participation
CAF is committed to empowering parents and helping them to become involved in shaping the services that their disabled children need. Parents have strong views about the services they get; whether agencies are working together and most of all, whether the needs of their children are truly being met.

 Events

We are arranging regional information and networking events for parents and professionals who are already involved in participation or who are not involved at present but who would like to know more.

I believe that professionals go into the caring professions because they want to help us and then they find that they have to defend a system that they have no control over. I feel like the system plays us off against each other and makes us enemies and wastes all our energies. But professionals are our natural allies and when we work together we are very powerful.’

Parent from Sheffield

 

TDC regional parent participation advisers can advise you on what is happening in your local area and answer any questions you might have about the programme.

 Parentchannel.tv

Parentchannel.tv is a new website that gives free, on-demand advice to parents and carers of 5-19 year olds; providing realistic and practical advice in quality, short video clips packed with useful, down-to-earth guidance from parents, experts and children.

The service currently offers 97 online films on topics ranging from the everyday to the hard hitting. The films feature case studies, top tips and helpful suggestions in 3-4 minute packages so that parents can get straightforward, impartial guidance from real people.

Further videos are available at www.parentchannel.tv.

 News

Free Computers and Assistive technology
20/07/2010

Government scheme on offer to school-age children with a learning or physical disability who come from a low-income family. The Home Access has been very successful with only 20,000 grants left to award. Due to the success of the programme Home Access are now inviting applications for computers for children with severe disabilities or Special Educational Needs. If a child has difficulty using a computer because of a severe disability or a special educational need, they may be eligible for a tailor-made Home Access package based on a simple evaluation of their needs.

Source: Home Access

Commissioner calls for children to contribute to child protection review
16/07/2010

The children's commissioner for England is urging teachers, social workers and youth workers to encourage children to take part in the government's review of child protection.


Teather announces green paper on SEN and disabled children
08/07/2010

A green paper on special educational needs (SEN) and the lives of disabled children will be published this autumn, children's minister Sarah Teather has announced.


Child Accident Prevention Trust News June 2010
01/07/2010

The latest edition of CAPT News, the newsletter from the Child Accident Prevention Trust aims to equip you with the knowledge, resources and tools to make a significant contribution to preventing serious childhood accidents in your community.

Source: CAPT

Bliss re-launches Families and Carers website pages
28/06/2010

Bliss, the charity for babies born too soon, too small or too sick, has recently re-launched the Families and Carers section of their website as Support for families. This will now be divided into four main sections; Before your baby is born, On the unit, Going home and Older children. It will also have all new landing pages to help make navigation easier throughout the sections. The colour has also changed to ensure it is as user friendly as possible.


Let’s listen - Young children’s voices - profiling and planning to enable their participation in children’s services
21/06/2010

Young Children's Voices Network have launched a new resource; part funded by Participation Works. This resource is to support early years settings and local authorities to evidence and plan listening to young children and enabling young children’s participation in children’s services. Over 60 guests from all over the country attended the celebratory event which included presentations from Dr Cathy Hamer, who developed ‘Let’s listen’, and colleagues from Hertfordshire County Council, who shared findings from their young children’s consultation project which explored 3 and 4 year olds’ experiences of the Flexible Free Entitlement.


REDBRIDGE: Rights of disabled children to be discussed at conference
04/01/2010

THE LEGAL rights of disabled children and their carers will be discussed at a special conference in Redbridge next week. The event - which is also due to focus on the services available to disabled youngsters in the borough - will be held at Redbridge Town Hall, High Road, Ilford, on Friday, January 15, at 9.30am. The conference has been organised by the Parents Forum Interface, which was set up last year to fight for better services for families with disabled children.


Funding helps Horsham project for disabled children
08/12/2009

FOLLOWING a successful bid by Horsham District Council for more than £60,000 in funding, a co-ordinator has been employed to oversee a project for disabled children in the area. The council recently gained more than £60,000 of funding from the Department of Children, Schools and Families and the Department of Health to develop seven out of school activities for children with additional needs and their siblings, entitled 'Aiming High for Disabled Children'.


Dorset parents unite to campaign for disabled children
17/11/2009

ONE hundred parents have joined together to create a group dedicated to improving the opportunities and services available to disabled children. The Dorset Parent Carer Council (DPCC) launched this month and has secured £10,000 in funding through the Government’s Aiming High initiative.

Source: Dorset Echo

Parents launch new action group
10/11/2009

A PARENT action group was officially launched in Grimsby Town Centre. Members of the Parents United For Individual Needs (Pufin) held their launch campaign in Freshney Place. The group is funded by Aiming High and works to voice the concerns over issues surrounding children with additional needs. Amanda Burkitt, of Pufin, said: "The group was born from the Aiming High For Disabled Children consultation events that took place in 2008.


Comic celebrity Henry Normal to speak at Amaze Parent Information Fair
28/10/2009

All parents who have children with disabilities, complex health needs and special educational needs are invited to the Amaze Parent Information Fair on Friday 6 November at The Brighthelm Centre on North Road, Brighton. The event, for local families, will provide information stalls, goody bags and free pampering from 10.30am till 12.30pm - but the highlight for many will be hearing Henry Normal and his partner Angela Pell talk about their experiences of having a child with special needs. Henry Normal and Angela Pell live in Brighton and are Amaze’s new patrons. Henry began his career as a stand-up comic and poet and has been responsible for creating, writing, executive producing and script-editing some of the UK’s best television comedy of the last decade. Angela Pell’s career began as a performance poet and she’s a sit-com and film writer. Her first screenplay was the 2007 film, ‘Snow Cake’, which stars Alan Rickman and Sigourney Weaver, who plays an autistic woman The Information Fair also marks the launch of the Parent Carers Council (PaCC), a forum for parents of children with special needs which aims to help improve local services and support. The PaCC is supported by Amaze. The charity’s Annual General Meeting follows at 1.00pm and parents who book beforehand on 01273 772289 are welcome to stay for the AGM and lunch.


Children’s Minister: Building parents’ and carers’ confidence online with myguide
21/08/2009

Children’s Minister Delyth Morgan today launched a new facility on myguide, a free and easy-to-use tool to help parents and carers catch up with their children when it comes to the Internet. myguide helps provide the next step in the Government’s implementation of Dr Tanya Byron’s review of internet safety. myguide can be used independently, with the support of a friend or family member, or with help from experts in one of the thousands of UK online centres based in libraries and community organisations.

Source: DCSF

Young Minds Parents Helpline Survey
10/08/2009

Are you are a parent of a disabled child or a disabled parent? YoungMinds parent helpline wants to get parent’s views to find out about the emotional wellbeing of their your children, and what help has been offered if things get tough.

Source: Young Minds

Young Minds Parents Helpline Survey
07/08/2009

Are you are a parent of a disabled child or a disabled parent? YoungMinds parent helpline wants to get parent’s views to find out about the emotional wellbeing of their your children, and what help has been offered if things get tough.

Source: Young Minds

Contact a family - Big Day Out!
09/07/2009

As part of Contact a Family's 30th birthday celebrations the Big Day Out will encourage and facilitate families with disabled children to get out and about and enjoy play and leisure together throughout the month of August. Read more and access the Big Day Out toolkit via the above link.


Parents rate local authorities on services for disabled children for the first time
13/05/2009

Sarah McCarthy-Fry, Minister for Children, Schools and Families today announced the results of the first ever national survey of parents’ views of services for disabled children. On average, parents rated the services for their disabled child as 59 out of 100, providing the Government and local areas with the first ever tangible base point from which to track progress or changes in perceptions and experience in future years on services for disabled children, covering health, education and social care. The score means that local areas can track their progress and means that families can expect to see further improvement as local areas benefit from the ground-breaking Aiming High for Disabled Children programme and the resources Government is investing in transforming services for disabled children.


North East Lincolnshire Aiming High for Disabled Children Feedback Newsletter
08/04/2009

Over a three month period North East Lincolnshire Council held a number of consultation events. They received over 427 comments from the parents/carers, young people and workers. They have issued a newsletter which brings together the over-arching themes expressed in the consultation and responses to comments, which include: - Relationship building - Information provision - Equality of access and service provision - Staff training - Town planning and transport To view the newsletter please click the link below.


North East Lincolnshire Plan Together Database
08/04/2009

Each local authority has a legal requirement to collect information about children and young people with special needs and disabilities. This is so they can monitor, plan and provide services that meet the needs of those children and young people. Plan Together will be the tool that is used for the collection of this information. At present North East Lincolnshire council does not have enough information from families and their children about their requirements. If services are to develop we need to collect information that can then inform the shape, size and type of service. The council is therefore encouraging parents and carers to join the database.


Funding and payment arrangements for the 2009-10 Sure Start, Early Years & Childcare Grant (SSEYCG) and Aiming High for Disabled Children (AHDC)
19/02/2009

Attached is a letter to Directors of Children's Services, LA Chief Executives and LA Finance colleagues from Frances Carter, Team Leader, Early Years, Extended Schools and Special Needs Group. the letter sets out the funding and payment arrangements for the 2009-10 Sure Start, Early Years & Childcare Grant (SSEYCG) and Aiming High for Disabled Children (AHDC) and also the terms of grant which local authorities will need to accept before any funding is released.

Source: DCSF

Parent participation takes off
15/01/2009

Parent groups in 97% of English local authority areas have now been allocated funding to help them have a say in planning and shaping disabled children’s services. In just two months parents with disabled children in 145 of the 150 local authority areas were successful in bidding for grants to help them get involved in local decision making. Over the next year a further £1.5 million is available to parent groups to develop participation activity across England, as part of the Aiming High for Disabled Children (AHDC) programme. To read more on this press release please refer to the document within the link.


 Making Parent Participation Work: Toby Price, LB Sutton

 
 

More than 60 parents of disabled children from across London came together for a landmark parent participation event.

 

Together for Disabled Children organised the event to support parent carers in their efforts to be involved in planning and developing disabled children’s services.

 

This video features Toby Price, Head of Sutton Disability Partnership for Children and Young People, who talked about how parents and services have worked together in Sutton and the benefits that this has brought to all.

 

Please view the video using the links below.

 

http://tinyurl.com/6582hn

http://tinyurl.com/5sz8dj

 

 

 ‭(Hidden)‬ Events2

Date Event Time Venue
26/02/2010 East of England - Being a parent representative - making it work for you 09:30 - 14:00 The Maltings
Ely
CB7 4BB
02/03/2010 East Midlands - Infinity and beyond! Developing action plans for sustainable participation 10:00 - 14:30 Nottingham Gateway Hotel
Nuthall Road
Nottingham 
NG8 6AZ
03/03/2010 West Midlands - Infinity and beyond! Sustainable participation in action 10:00 - 14:30 Edgbaston Cricket Ground
Edgbaston Road
Birmingham
B5 7QU

08/03/2010

North West - Sharing good practise and identifying barriers Parents 10:00 - 13:30, Professionals 12:30 - 16:00 Liverpool Football Club
Anfield Road
Liverpool 
L4 0TH

17/03/2010

North West - Reaching shared perspectives, moving forward with a joint vision 10:00 - 14:15 Liverpool Football Club
Anfield Road
Liverpool 
L4 0TH

 

Details of future events will be added shortly.

For further information, or to book a place, please contact Kate Johnstone on 0207 6088783 or at kate.johnstone@cafamily.org.uk.

 

Details of future events to follow.  Other TDC events can be found on the events calendar.